13.3.10

But you get used to it, don't you?

Get used to constantly feeling drunk, nauseous, exhausted, dizzy, light-headed, like my heart is going to jump out of my chest, my joints that don't know how to stay in place and constantly hurt, and all of the other lovely things that go along with POTS and joint hypermobility syndrome?  Unequivocally NO!!

This post came about from a conversation I had with my mom last night.  She has been hit with a pretty severe stomach virus (although she's feeling better now), but was complaining about how she feels so weak and swimmy headed.  Of course I empathize with her feeling so lousy, but then I mentioned that I feel like that every single day, and it might get some better occasionally, but it would never go away, she responded, "You get used to it, though, don't you?"  I wanted to scream at her, but I didn't, because at least now she has an idea of what I deal with on a day to day basis and isn't trying to completely minimize and dismiss what I'm dealing with everyday.  She is coming around, but I suspect that it will take a lot longer for her to understand as completely as someone without these illnesses can.

And that's all I really want from her, understanding.  I want her to understand that when I don't get out of bed until noon, it isn't because I'm lazy, that I take my meds because, even though it does cure anything, it does make the symptoms somewhat better to deal with, that I go to the doctor all of the time not because I'm a hypochondriac, but because I'm actually sick.

Ok, rant over.  I'm going back to sleep.


4 comments:

The Celiac Diva said...

I totally feel for you, I know those conversations where those we love assume we are use to the pain is really hard. I don't have POTS, but I can identify with my own crazy condition. Hugs to you, hope today is better than yesterday.

Lucy

Teresa @ ♥ Too Many Heartbeats ♥ said...

Hi there. I just found your amazing blog! I also have Dysautonomia/POTS. I was diagnosed in 2007. As usual, it's a very long story. *sigh*

I'm so sorry to meet you under these circumstances but I'd love for you to come by and visit me! I'm currently doing a series of posts called, 'DYSAUTONOMIA: My Frequently Asked Questions'. I have had a lot of readers email and ask me various questions about my personal battle with this ugly disease. So, I finally put together a list of the most asked questions and my answers. I really hope it will help others.

I love to meet new bloggy friends, especially those who share this same illness. It really helps to know I'm not alone.

Well, I hope you have a 'good' weekend.

Blessings,

Teresa <><

Teresa @ ♥ Too Many Heartbeats ♥ said...

Thanks SO MUCH for stopping by and reading my series! I have added your blog to my resource list AND to my blog roll. I hope you will visit me again soon!

Have a wonderful day!

Teresa <><

Michelle Roger said...

I feel for you Ericka. I'm not sure how we can ever get 'used to it'. I think about my back pain which I've had for years. It is a bit white noiseish now but that doesn't make it 'easier' or okay. Being in constant pain should not be the norm. Neither should dizziness, fatigue, nausea..... Hope you're feeling a bit better.
Hugs and Love
Michelle :)