Burnt Gold

I have been tried, as gold tried by fire, in my body and in my mind and in my soul... I am a bit crispy around the edges, and I kinda smell funny, and like a too wet log, I snap, crackle and pop.

Posts about health

Happy Anniversary
Snow and pain
Osteoporosis at age 24
Facing Death, missing life
Aloneness and lonliness
Thanksgiving

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  • Home
  • About Me
  • About Ehlers-danlos syndrome and other collagen de...
  • About Postural Orthostatic Tachycardia Syndrome
  • Posts about God, faith,
  • Posts about health

My Blog List

Ehlers-danlos/connective tissue disorder links

  • Connective Tissue Disease Wiki
  • Stickler Involved People
  • Stickler Syndrome Support Group
  • Ehlers-Danlos Syndrome Network
  • Ehlers-danlos Syndrome National Foundation

Dysautonomia Information

  • National Dysautonomia Research Foundation
  • About.com's take on dysautonomia -- has some history of dysautonomia
  • Dysautonomia Information Network

Popular Posts

  • Thanks be to God, I'm feeling better today....
    The cold that I've caught (thanks Mom and Dad!) doesn't seem to be that bad... or at least the Mucinex and the Neti Pot that I'v...
  • medicine mayhem
    One of my most prominent early POTS symptoms was severe mood swings with these "panic attacks"... All of the same symptoms of a pa...
  • The love of music... a gift and a curse
    Before everything went to hell, it was not uncommon for me to practice piano and voice 3 or more hours a day.  Sometimes, it would be more l...
  • Soooooo tired!
    I didn't go to church this past Sunday (gasp!! I know) as I was too busy vomiting and dry-heaving all day long... ended up going to the...
  • PAIN!!!!
    Walking silently today has been nearly impossible and completely terrible. With each step, my ankles slid out of place just enough to slam ...
  • Questionare about my illness
    I read this on another blog, and in a couple places and wanted to fill this out for myself. 1. The illness I live with is: Postural orthosta...
  • Conflict
    I hate conflict. I really do. Some of my worst memories growing up involve heated "discussions" (yeah right!) that my parents ha...
  • But you get used to it, don't you?
    Get used to constantly feeling drunk, nauseous, exhausted, dizzy, light-headed, like my heart is going to jump out of my chest, my joints th...
  • Happy anniversary
    I guess. I don't feel like writing that much today, but I would like to recognize that a year ago on this date, I was finally given a n...
  • Them bones, them bones, them thin bones
    My bones are confused. Or very lazy. I don't know. They are like a 70 year old's bones, lack of calcium and all. Perhaps that is...

Blog Archive

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      • It's too late..
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Ericka McCarty

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